Inspiring

Inspiring

At one point over the summer, I found myself on a breast cancer forum on Reddit. It started as I looked for answers as to whether a side effect was common and what solutions others had found for it, but we all know how those can rabbit-trail, right? I ended up reading some threads that had me laughing, some that me blinking back tears, some that had me nodding along, and few that left me scratching my head.

One that has stuck with me was a rant–an understandable one, in one respect. The poster was saying how she hated to hear “you inspire me,” or “you’re such a warrior.” Her take, and the take of most of the people who commented in reply, was that she didn’t want to inspire anyone. This wasn’t a battle she’d chosen. She wasn’t a warrior, she was just a conscript in a battle that scientists and doctors were fighting, and she didn’t want to be there, so don’t call her a hero. I similarly heard from a few individuals along the way that they, too, hadn’t liked it when people said they were inspiring in a battle not of their own choosing.

I get that, in a way. But also…I don’t. Because here’s the thing.

We never get to pick which battles we’re tossed into in this world, not really. Much as “pick your battles” is an adage, it’s one with limited scope, right? Because it’s all about choosing not to make a battle of something when it’s all but useless. When it comes to health struggles, chronic illness, disease, behavioral health problems…no one chooses these battles. But that doesn’t mean we don’t have to fight them.

And most of all, it doesn’t mean we don’t get to choose HOW we fight them.

I know, I know, I’ve already talked quite a bit over the summer about choosing to approach our limitations with an attitude worthy of Christ, so I don’t want to just repeat myself. But at the same time, it bears repeating and dwelling on. And it bears it, in a way, because of its simplicity.

I’m still getting so many messages saying how inspiring my attitude is, and how it has proven an encouragement for other people going through their own struggles. And I hear, in the back of my mind, those people in the forums saying they don’t want to be that inspiration. And it makes me…sorrowful. Because why? Why wouldn’t you want to lend others strength simply by being there? Why wouldn’t you want to prove to them, by putting one foot in front of the other, that they can keep putting one foot in front of the other? What I love about that is that it doesn’t require giving up any of the measly strength I have to help someone else–it doesn’t weigh on me or hurt me at all. All that’s required is that we stand here, wherever God has put us, and say, “He’s got me. And because you can see He’s got me, you can know He’s got you too.”

I’ll be honest–optimism comes easily to me. It doesn’t, generally speaking, require effort. When my husband says, “I’m so proud of how you’re making the best of this,” the only possible response is, “What else am I supposed to do, make the worst of it? What would be the point of that?” But as my doctor pointed out, “You’d be surprised.” So often, we choose to dwell on the negatives instead of the positives. So often, we get worn down. So often, even what people intend as encouragement just grates on us, a reminder of what we’re going through and don’t want to be. Sometimes, it feels never-ending, and sometimes there really is no end in sight.

I get that in those times, the last thing we want to think about is the idea that God put us in this so that someone else could be inspired. That seems pretty awful, right? Why should we have to suffer just so someone else can see us and say, “Hey, I can get through it too”? But I would say that that isn’t the reason we suffer. But it can–and I daresay should–be a consequence of our suffering. It isn’t the reason, but it can be part of the meaning we take from it.

There are going to be days in all our lives when we don’t feel like smiling. When we’re miserable. When we just want it to stop. There are days when we struggle to remain positive, when tears come, and frustration and hurt and depression. It’s okay that we have those days. And when we’re in them, seeing someone else going through something with a smile might actually do us more harm than good, emotionally speaking. But when those days come, instead of thinking “I don’t want to inspire anyone in this battle,” I personally have found it to be a great help to just pause and think, “How is this inspiring?”

Seriously. On some of my worst days, when someone has commented or messaged to say how inspiring I’ve been, I have to ask how and why. I don’t feel inspiring. I don’t feel like I’m doing anything big or great. I’m not trying to project anything in particular or live up to anything for the sake of others. Those days, I am literally just plodding along, drained of energy and want-to. And then someone will say something like that, and I think of those people on the Reddit forum who would clench their teeth and bite back a sarcastic retort. And again I’m filled with that sorrow.

Because you know what I hear when someone says that? I hear, “God is capable of using my mess in ways I can’t imagine.” When I see someone blinking tears from their eyes for me, I see God binding His Church together in ways I could never do on my own. When someone reaches out to say they know they can keep fighting because I keep fighting, I marvel at how He is so strong, so capable of holding us in His hand, when we are at our weakest.

In my head, “positive” is just the default. I’m usually surprised when someone chooses a different perspective, LOL. I don’t think about it being anything unique, not until one of my doctors says something like, “And you’re still smiling and laughing. You don’t know what a difference that makes.”

I’m learning, though. I’m learning what a difference it makes–not just for me, but for everyone else. Because no, I didn’t choose this war or this battle, maybe I was drafted into it like everyone else. But that doesn’t mean it’s not my part to fight it valiantly and worthily. No, I didn’t choose this so I could inspire anybody–but that doesn’t mean God can’t and won’t use it to do just that. No, I don’t want to be going through this–but I am, and so I will walk through each day as a child of Light, not of darkness. And I will reflect that Light in whatever way I can. Through a smile, through a joke, through vulnerability.

Maybe none of us get to choose the fight…but we get to choose what we’re fighting for. And when we look beyond ourselves, when we embrace the inspiration we can be for others, just as we look to the inspirations those who came before us provided, it can change everything. We don’t need to set out to “be inspiring.” We simply have to open ourselves up to God and say, “Do with me, with this, whatever You will.” He’ll take care of the rest.

Word of the Week – Seconds

Word of the Week – Seconds

Time for another word brought to us by Shakespeare!

This time, we’re looking at seconds. Now, first, note the -s on the end of the word. We’re not talking here about second, but about seconds…and we don’t mean the measure of time. 😉

The meaning that Shakespeare coined for us in one of his sonnets circa 1600 is “articles below the first in quality.” So think of items pulled from production that aren’t quite up to full quality so are sold at a discount. Shakespeare first used this as an extension of the natural meaning of “following the first” and it stuck!

Now, maybe your favorite meaning of seconds is a second helping. (I mean…) If so, then you should know that that meaning dates from 1792. So we can’t thank Shakespeare for that one, but that’s no reason not to enjoy it. In fact, I’m going back for seconds on my coffee right now…

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I Have a Confession

I Have a Confession

“I have a confession.”

When we see words like that today, what do we do? Do you sit forward a little? Straighten your spine? Click to see who is confessing to what? And what do we expect to find? Often, something silly, right? Something tongue-in-cheek. When you saw my title here, you might have thought I was going to confess something bookish, something funny, something silly.

What would you do if I actually confessed my sins? The dark thoughts? The selfishness? The times I judge? The failures to keep Christ first in my life? What would you do if I confessed my disrespect and my dishonesty and my disregard for what should be kept primary? Well, maybe you wouldn’t be too surprised–I do tend to talk about vulnerable things here, LOL. But in general, we don’t expect those kinds of confessions today, do we?

Something I’ve noticed–and I’m not the only one–in the modern church is that sins only tend to be talked about when they have been overcome and defeated and become a testimony to strength. We don’t see people getting up in front of the church very often and confessing to a current struggle…which means that too often, we have to struggle alone. Pride and individualism have snuck their way in, and the very thought of admitting our weaknesses and failures out loud to another human being is enough to make our “must be perfect” society cringe.

So we say, “I’ll confess it to God. That’s all I have to do. Christ is my only mediator.” And He is, yes…but James 5:16 doesn’t say “confess your sins to God.” It says “confess your sins to one another.”

Why?

Sit with that question a minute. Seriously. Ponder why we’re told to confess to each other, not just silently to God. What is the purpose?

Is it to embarrass us?
Of course not.

Is it to shame us?
No.

Is it to drive a wedge between us and those around us, who will now be judging us?
On the contrary.

It’s the exact opposite of that. The purpose of confessing to each other is to unify us as a whole, not as individuals. It’s to strengthen the church by making the members one. When we know each other’s problems, we are to pray for each other, strengthen each other, work for each other.

I will admit that when we were contemplating joining the Catholic church, the idea of confession was a hurdle for me. And even now, several years in, it isn’t easy. But one of our very first weeks sitting in our new church, this penitential act was spoken, and it struck me and helped me reframe it.

“I confess to almighty God,
and to you, my brothers and sisters,
that I have greatly sinned
in my thoughts and in my words,
in what I have done, and in what I have
failed to do;
through my fault, through my fault,
through my most grievous fault;
therefore I ask blessed Mary ever-Virgin,
all the Angels and Saints,
and you, my brothers and sister,
to pray for me to the Lord our God.”

Look at those words. Said aloud, together, these words don’t get into specifics of how each of us have sinned–but it’s admitting that we have. We’ve thought sinful things. We’ve said them. We’ve done them. We’ve failed to do good. And it’s our fault. We can’t cast the blame onto anyone else. We did it. Each of us. And that bears repeating.

My fault. My fault. My fault. We sometimes have to say it multiple times for that to really sink in. And in fact, when we say this prayer, we make a fist and press it to our heart with each utterance of fault. It’s meant to strike us right in the heart. It should. Because we all sin, even when we’re saved. We still think and say and do things we shouldn’t. We still fail to think and say and do things we should.

So…what do we do about it?

The first step is the second part of that prayer. We ask for help. Of God, yes, but not just of God. He did not come ONLY to establish individual relationships with us–He came to BUILD A CHURCH. A community of faith. So we ask each other for help. We ask those who have come before and who have achieved final victory to pray for us (I know this is unique to the Catholic and other Orthodox faith, but that’s all “praying to the saint” means–asking them to pray for us), and we ask EACH OTHER, the people around us now, to pray for us.

Whenever we pray this together, I make it a point to look at the people around me for this part. To see them. To realize that though I don’t know the particular sins they’re struggling with, I know they’re struggling with something, because we all are. And I lift them up before our God. I pray for them, as I trust they are truly praying for me.

And it’s a beautiful thing. Because while I have no trouble asking people to pray for my health or my job or my family…I have a harder time asking for them to pray that I become less judgmental. Or that I resist the temptation to think about things I shouldn’t. Or…fill in the blank. It’s hard to ask for help in our sins. Easier to ask in our misfortunes.

So what about those specific, named sins? There’s no place in that prayer recited in church for each person to shout out his or her sins (no complaints here, LOL). But that doesn’t mean that we don’t need to talk to someone about them. To unburden our hearts and be assured that we’re forgiven. To know someone is praying specifically.

And that’s why there has ALWAYS been confession in the church–because we need it. Did you know that C. S. Lewis even found a local vicar to hear his confession? It’s not part of the Anglican ritual, but he recognized the need, because it’s real. We need to be able to confess our sins to someone trusted. We need to hear them say, “Jesus loves you so much, and He is so glad that you long to be closer to Him. He forgives you and welcomes you.”

So do you want to hear my confession about going to confession? It’s something I always put off doing. Something I go to each time totally uncertain about what I’ll say. I mean, I haven’t committed murder or adultery or theft or any of the other Biggies. So I have to sit for a while in the quiet of the church and pray that the Holy Spirit will help me see my own soul with His clarity. To uncover the things that displease Him, that keep me from being fully aligned with His will.

And each time, I see. I see that I am too focused on the world and not enough on Him. I see that I am distracted, that I have failed to pray for those I should. I see where I’ve strayed from His perfect path. And then I go in and sit with one of my priests, and I say the words…and something amazing happens. This unemotional, stoic woman who rarely cries starts crying. This word-smith runs out of words. This proud person crumbles.

Then comes the moment of immeasurable beauty. One of my priests smiles and reminds me of how much Jesus loves me. Of how pleased He is that I’m there, humbling myself before Him. He encourages me to pray in specific ways, ways designed specifically for me, to draw me closer to Him and to my fellow-believers.

I walk out of that room lighter, each and every time. I walk out surrounded by the knowledge of His love, like a physical embrace. I walk out made new. Made stronger because I confessed to my weakness. Stronger through Him, not through me. And I also walk out feeling more a part of His Church, this faith community. Because the priest doesn’t just offer us Christ’s forgiveness, they offer the Church’s as well. They forgive us on behalf of each other, binding us together.

I readily confess that I was one of those Protestants that “had a problem with confession.” I readily confess that I still find it difficult. But you know what? I also confess that it has proven one of the sweetest gifts of my life. Confession truly is good for the soul…at least when it’s done for the right reasons. Not only to unburden ourselves, but to cleanse us of our sins. Not only to strengthen each of us individually, but to strengthen His Church.

Pray for me, friends. And I will pray for you. And together, we’ll walk in the strength of Christ.

Word of the Week – Hint

Word of the Week – Hint

I love finding words that Shakespeare was the one to introduce to us…or at least, the first one we have record of. Goes to show the power of a writer, right? 😉

Did you know that hint also comes to us in its current meaning of “an indirect suggestion intended to be caught by the knowing” via Shakespeare as well? It’s true! He first used it right around 1600. It traces from Middle English hinten, which meant “to inform,” which is in turn from Old English hentan, which means “to seize.”

The noun form pre-dates the verb by about 40 years. By the late 1700s, the OED also records the meaning of “a small piece of practical information.” You know, like “I like coffee and chocolate. Hint, hint.” 😉

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Chemo Is DONE!

Chemo Is DONE!

I am SO happy to report that on Monday, I received my LAST chemo infusion!

Cue the confetti!!!

I got to ring the bell, and afterward, we went to Cheddar’s Scratch Kitchen and celebrated with cheese fries and a giant slab of chocolate cake (over half of which we totally brought home, even with two of us eating on it. That slice was enormous!)

Of course, “finished” is a relative term when it comes to this sort of thing in a breast cancer journey, I’m learning. Depending on my surgery date, I may in fact need one more abbreviated round (only one chemo drug, and not the one that makes people sick) just to make sure everything stays shrunken before surgery. They have that on the calendar for Oct 7, but as of when I’m writing this, I don’t actually have my surgery date; it could be Oct 4, in which case this round would be cancelled.

So what’s coming next? Well, as I just mentioned, surgery is next up on the docket in early October. A lumpectomy is off the table for me due to the size of the tumor versus my size…it doesn’t leave me enough breast tissue. So mastectomy was a definite, and the choice I had to make was single or double. Due to my young age and the fact that I’ve already proven myself prone to breast cancer despite negative genetic testing, my chances of getting breast cancer in the other breast at some point in the future is quite high. If, however, I have it removed now, that chance drops by 90%. I am not interested in going through this again if I can help it, so I’ve opted for the double mastectomy, which is what they recommend for someone my age.

The next decision to be made then was what to do for reconstruction. The choices are between silicone and free tissue, which is when they basically give you a tummy tuck and use that tissue and skin to rebuild the breast. In some ways that’s the best option, but as my team put it, the chances of the skin being damaged in radiation is high, and if we’ve already used that skin from my stomach, there’s nothing to fix it with. If however, the skin is damaged and we’ve done silicone, we can still use that tummy/thigh skin to fix it. So they recommended starting with silicone and having the free tissue as a backup, which is what I was leaning toward as well and what I’ve decided on after much thought and prayer.

I still need to decide, then, where I want to do radiation, which will begin around 4 weeks post-surgery. I definitely did not want to do my chemo and main treatments in my hometown, but my oncologist on Monday said he wouldn’t hesitate to go to Cumberland for radiation–the treatments are standardized, and he knows and trusts the radiation oncologists there. He said he wouldn’t have recommended general oncology there–they don’t specialize, which means the same doctors are working with all kinds of cancer, and they have twice as many patients each as they do in Morgantown. As he put it, when you’re dealing with that many patients with that many cancers, there’s just no way to keep up with the details of each one. By focusing solely on breast cancer, my team in Morgantown can stay on top of all the developments in treatment, and they’ve found that making very small adjustments can make a big difference. As he explained it to me, radiation is very different. The plans are standardized, and they would come up with said plan in Morgantown and then Cumberland could just carry it out, and there’s little room for user error. And since it’s 5 days a week for a month, saving myself 3 hours of driving a day has definite benefits! I’ll continue to pray about it, for sure.

And even after radiation, I won’t be done. I will still have 11-14 more infusions of anti-HER2-protein meds, given every three weeks, back in Morgantown. Sometimes these can start during radiation, sometimes the radiation oncologist will advise waiting until radiation is complete. Sometimes they may involve the same chemo that I may get before surgery for 3 rounds or so, if they weren’t totally confident that all cancer had been obliterated by surgery, but if we see complete response beforehand, it won’t be necessary to tack that one on. Either way, I should be through the worst of the sickness here in the next few weeks, and the other side effects should start going away by surgery. Hair and nails should begin regrowing/repairing soon.

Have I mentioned the fingernail stuff? Before my 5th infusion, I began noticing my nail beds going wonky and pulling away from the nails, on some fingers more than others. I hadn’t been aware that this could happen to have looked up how to prevent it beforehand, but my oncologists, when I brought it up, did say that it’s pretty common and that I could lose some nails. They’re hanging on so far, and hopefully I won’t fully lose any at this point. I bought something called PolyBalm, which was developed in the UK–it’s a waxy/herbal product you apply directly to your nails twice a day. Their studies showed that of the people who used it the whole time during chemo, none experienced nail problems. The control group, however, did. Results are mixed when you start it after seeing issues, though plenty of patients had before and after shots showing it helped restore their nails. I got some, figuring it was worth a shot. I haven’t noticed them getting any worse since I started using it, so that’s a plus. And now I know what I’m going to send people when I hear they’ve been diagnosed with cancer!

I also met with PT on Infusion 5 day, and I’ve been doing exercises they gave me for leading-up-to-surgery. Because I have lymph node involvement and they will have to remove the nodes on my right side armpit, that means I’m at risk for lymphodema. The lymph nodes are the body’s drainage system, and removing them means fluids could stop draining properly in my arm. The exercises, and others I’ll be given for after surgery, are meant to help with that. I was also instructed to wear a ring on my right hand and pay attention to which notch my watch is buckled on–one of the first signs of lymphodema is swelling in the wrist and hand, and the ring and watch will help me know right away if that’s happening. If we catch it early, they can usually stop it without lasting effects; if you don’t catch it early, you can end up with mobility problems in your arm for the rest of your life. Not interested in that, thank you! So I will be paying close attention and doing my exercises religiously!

So as we can see here, chemo is done, but there is still quite a long road ahead of me; those anti-protein infusions will take up to 42 weeks to complete, which means I’ll have been in this whole process for more than a year before I’m officially “done.” Which in some ways is crazy to think about. When my sister had non-Hodgkins Lymphoma 8 years ago, it was serious. It was a dangerous cancer with incredibly intense chemo treatments–her infusions lasted a week each! She had to cart it around with her! But after her six rounds of super-chemo, she was done. No surgery, no radiation, no follow-up infusions. It’s funny to think that mine is the “easy” cancer by contrast, yet so much more involved and drawn out in the treatment process. Not that they can really even be compared, of course, but being most familiar with her treatment, I was quite surprised at how long mine would be.

But so, so happy to be finished this part of it! The rest shouldn’t make me sick, and I am SO ready to move out of the stage of constant nausea. Even though I haven’t had vomiting or diarrhea much since round 3, I have not had a single day since treatments began in May that I haven’t felt nauseous at some point in the day, even if it’s not all day. Three+ months of a rolling stomach is exhausting, and I am so ready to be out of this stage! I’m looking forward to celebrating the end of it with my writing retreat in Kansas City in September, and then going to my 20th reunion at our college Homecoming the last weekend in September. Those are two things that will be such fun before I move to surgery and recovery and then on to radiation! And of course, we have our December vacation to look forward to after surgery and radiation. Very excited for that!

My overall energy levels are already improving too, though these last few weeks my legs have felt so tight and tired whenever I walk. My labs on Monday showed my protein and iron levels were a little low, so maybe that has something to do with it. Clearly I need a nice steak. 😉 But at any rate, I’m already so much better than I was, and I am so looking forward to reclaiming health and getting my body back in shape! (Eating helps with the nausea, which means I’ve been gaining instead of losing weight, which is not what I wanted to happen! But I figured “Get through this first. Worry with that ten pounds later.”)

So here we are! DONE with the nastiest bits and ready to move on!! Thank you all SO MUCH for traveling this journey with me! Your constant influx of prayers and support have brought me countless smiles and made it so that I have never, for one minute, felt alone. I appreciate you all so much!